Raising Awareness for Rare Disease Day and PSP
Rare Disease Day occurs on 28th February every year (29th during a leap year – the rarest day of the year). This day raises awareness and promotes change for the 300 million people worldwide living with a rare disease. This year, the team at Mayfield View are supporting and sponsoring Katy (daughter of resident) who is raising money and awareness for The PSP Association after her mum was diagnosed with Progressive Supranuclear Palsy (PSP) in March 2020.
PSP is a rare progressive condition that can cause problems with balance, movement, vision, speech and swallowing.
“Mum was diagnosed with PSP the week before lockdown. The PSPA Helpline was a lifeline at a time when we had no other help. They have continued to provide practical and emotional support throughout this difficult time. They provide information and support whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP in their tracks.
My motivation is to try and give something back to this charity, whilst raising awareness. There is little known about this disease and people are often misdiagnosed.”
Katy has challenged herself to walk 12,500 steps/10km every day in February to raise money and awareness. Springfield are proud to sponsor Katy as she takes on this challenge! Katy said “thank you so much for the wonderful donation from Springfield. A week to go and I have nearly raised £1000 for the PSPA. Please pass on my thanks to all your staff.”
To find out more and to donate, visit Katy’s JustGiving page here.
Katy (pictured above) is aiming to walk over 200 miles in February